Patient Stories
Read Patient Stories From People Like You!
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Amy’s Scleroderma Story
How would you feel if a doctor told you to “get your affairs in order”? That is what Amy Gietzen was told when she was just 19 years old.
Amy had been experiencing severe joint…
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Ann’s Scleroderma Story
Ann has been a scleroderma warrior for over 20 years. She was diagnosed with Limited Scleroderma in 1999.
Ann started a podcast in 2021 after retiring from…
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Falguni’s Scleroderma Story
My story started in August 2018, although it wasn’t until the end of 2019 when I was diagnosed with Scleroderma Renal Crisis. I had been dealing for a year and a half with unnamed medical issues: multiple misdiagnoses, several allergic…
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Lou’s Scleroderma Story
Lou Renna was a son, husband, father, grandfather, brother, uncle, and friend to many. Lou battled scleroderma for approximately ten years and his journey was not an easy one. Over the years, the disease caused physical…
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Melissa’s Scleroderma Story
Hello, my name is Melissa. I am a nurse, author, advocate, and scleroderma patient.
In 2008, I began experiencing symptoms out of character for my health history. I developed…
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Rosa’s Scleroderma Story
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Resources
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