Patient Stories

Read Patient Stories From People Like You!

  • Amy’s Scleroderma Story

    How would you feel if a doctor told you to “get your affairs in order”?  That is what Amy Gietzen was told when she was just 19 years old.

    Amy had been experiencing severe joint…

  • Ann’s Scleroderma Story

    Ann has been a scleroderma warrior for over 20 years. She was diagnosed with Limited Scleroderma in 1999.

    Ann started a podcast in 2021 after retiring from…

  • Falguni’s Scleroderma Story

    My story started in August 2018, although it wasn’t until the end of 2019 when I was diagnosed with Scleroderma Renal Crisis. I had been dealing for a year and a half with unnamed medical issues: multiple misdiagnoses, several allergic…

  • Lou’s Scleroderma Story

    Lou Renna was a son, husband, father, grandfather, brother, uncle, and friend to many. Lou battled scleroderma for approximately ten years and his journey was not an easy one. Over the years, the disease caused physical…

  • Melissa’s Scleroderma Story

    Hello, my name is Melissa. I am a nurse, author, advocate, and scleroderma patient.

    In 2008, I began experiencing symptoms out of character for my health history. I developed…

  • Rosa’s Scleroderma Story

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If you’d like to share your story, please fill out the form below. To have it featured on this page, be sure to check the permission box—otherwise, it will be used internally for research purposes only. We respect your privacy. For general questions, please use the contact form instead.

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Resources

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